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Bless your heart. I want to meet others with this disease but at the same time I hate to think about another human being suffering in pain like this. I never knew people could hurt this much from a disease. The flares are like a toothache in your joints, red, hot swollen joints. I get the fevers and chills with it too. It has never been in remission. No, the Humira didn't work for me. Enbrel did but everything is short-lived with me. The MTX kept sending my liver enzymes up to high until finally they stopped trying to give it to me. I got worse on the Remicade. The Orencia worked for about 6 months, long enough for me to go back to work inhouse and now I am out on medical leave.
I have been in transcription for a little more than 6 years but with this condition it is off and on work. I have been hospitalized 6 times this year. I have had fluid removed from my lungs twice, so now when I swell, they keep me and give me IV Lasix, my electrolytes are usually out of balance, so they fix that too. I go home feeling better but 3 weeks later it is the same old song and dance. I have an appt. Tuesday. They are talking about starting Rituxan but worried about my kidneys. We will see.
Since the Humira worked for you, are you able to type okay? Can you do a full-time position? You can also e-mail me at the yahoo address if I am asking questions that are too personal.
Nice to meet you. Take care.
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Hi.... - Mom2Angel..sm
