Hi there,
I just found this board. I know there was one a few years ago but happy to see that it is back.
I have crippling RA and secondary conditions... active, reacitve, daily pain, all of the above. Many deformities which started in about the 8th year of the disease. It is now my 13th year.
I finally scheduled an appt for disability on Monday coming. I just did not want to give in but I am not able to keep a job. I am on medical leave from one inhouse job and work at home part-time on another, just wondering when will they tell me I am too unpredictable and cancel the contract. I really hope that doesn't happen, but people could care less about you having a flare-up. I just went through that with the last job. I have been hospitalized 6 times this year. Both hands are crippled with z-deformities, boutonnere's deformity, and swan-neck deformity. I just type around it but obviously much slower than I need to be for this job and definitely slower than the employer would like me to be. I made the mistake of thinking since this a desk job, then a disabled person should be able to do it.
If anyone else is going through the things I have mentioned above, please feel free to talk to me about any of it. I would love to hear from you and just hope we can support each other and/or come up with ways to still stay employed. blessings to all going through the various painful conditions.
MT in GA
RA 13 years and secondary conditions with sicca symptoms, bone on bone hips, etc.
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