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I am so happy to hear you were able to be weaned off the prednisone. My physicians have tried me on methotrexate, CellCept, Imuran, etc. in an attempt to help me wean, but my body definitely does not tolerate this class of drugs well at all and I am sicker on them (extreme nausea, vomiting, fatigue). Seems the prednisone is the only thing that helps, and as much as I hate having to take it, I have to be able to function at work, etc, so have just learned to accept it 
What dosage of methotrexate are you on? I think I was taking 12 mg a week. Actually, out of the above drugs, that is probably the one I tolerated the best! However, I did notice the longer I was on it the more fatigue I had, in addition to losing hair in gobs (I don't have much hair to spare!). Have you tried taking folic acid with the methotrexate? I heard it helps with the GI symptoms and mouth ulcers.
I tried to take Fosamax, but it would make me pass out. I think it is a very rare side effect, but I couldn't take that drug either. Also, in 2005 I had to be admitted to the hospital due to diplopia caused by the inflammation from the LH in my pituitary gland, received massive doses of IV steroids and developed glaucoma and serous retinopathy. NOT FUN! The glaucoma resolved, but have permanent damange from the serous retinopathy |
Thank you for your response..SM - NOLA
