it's comforting knowing you're not alone. I am also grateful that my rheumy is working with me and listening to my complaints - and thaknfully I'm not in pain like you so far my pain is controlled on Ultracet 2 tablets every 4 hours as needed - in which unless I am in a really bad flare - I don't even need. The muscle relaxer really helps too, so as long as my rheumy keeps working with me on my complaints I guess there's no need for me to see a pain specialist just yet - what gets me is the fatigue - and accepting that you can't do what you once could. My husband is really supportive and that helps too because like you said "you look okay to the normal eye", but inside you're dying or feel that way! I live in Louisiana and so once the summer gets here I am planning on doing some water aerobics in our pool to help with stretching, etc. I also am thankful that I am not the primary source of income because I can't imagine having to work 40+ hours to provide for myself and a family - that would do me in I think. I've not really lookoed into the disability thing (at least not yet)...kind of feel that if I did that I would be 'giving in' to the illness and I'm not ready to do that yet - I just hope that tomorrow will be a better day - I am glad that this board is here and I have somewhere to find support and know that I am not alone. I hope you get your meds adjusted and everything works out for you at your visit and thanks for the info on the pain clinic - at least now I know where I can seek further help when my pain gets to that point. I hope you have a good week and your pain gets relieved soon!