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I absolutely struggle with problems trying to work, do housework, etc. Luckily, I do not have kids and don't want any. Even if I changed my mind about that (which I won't, LOL), I couldn't do it anyway. I have a hard enough time taking care of myself. I am married and have a household to take care of. Unfortunately, I really can't take care of it like I used to (used to be a clean/neat freak). So, over the years with this I have just learned that I have to let it go and that I just can't do it. I do not have any "activities" or anything like that anymore either as I basically conserve 100% of my energy for work so I can stay employed, and I still don't make it some days but do the best I can. I can't exactly retire at 30, and although I have had docs talk about disability, I can't afford to be on that either.
Right now, I see a PMD and a pain clinic doc for my pain meds once a month. I do not do any of that behavioral stuff, although I'm sure I could if I asked. I just personally think it's a waste of money and time. When I was newly diagnosed about 5 or 6 years back, I was sent to a rheumy and PT, but again, both were a waste of time and money. So, I stopped going and got myself a good pain doc.
I also have the extreme fatigue as I have both the fibro and hypothyroidism, but I can deal with that usually. It's the pain that I couldn't deal with since it was so severe and constant. The pain meds do make it so I'm not suicidal, but they don't take it all away of course, especially since I continue to make myself work. At this point, I need them adjusted upwards and will hopefully get that worked out, but it's hard since the pain laws are so bad here in NY, well everywhere really.
I do wish you all the best of luck dealing with this. It's not fun at all, and people just don't get it since you "look OK." If pain is a huge factor, please do seek out a pain specialist who is willing to listen and help. There are a lot who are not, but there are some good ones out there. Again, good luck! |
Definitely have trouble working - Shannon
